1 00:00:00,000 --> 00:00:04,680 I am thrilled to introduce our final 2 00:00:02,370 --> 00:00:07,140 speaker for this week we very much 3 00:00:04,680 --> 00:00:09,330 wanted to be able to hear from Susan and 4 00:00:07,140 --> 00:00:12,300 specifically to have Susan sending us 5 00:00:09,330 --> 00:00:15,450 off today so the chance to have this 6 00:00:12,300 --> 00:00:18,119 final bit of inspiration and a shot in 7 00:00:15,450 --> 00:00:20,490 the arm as we all head back to our own 8 00:00:18,119 --> 00:00:22,529 homes and offices I hope you had a 9 00:00:20,490 --> 00:00:24,119 chance to meet Susan over the course of 10 00:00:22,529 --> 00:00:27,390 the past couple days and enjoy 11 00:00:24,119 --> 00:00:30,330 conversation with her Susan is um by 12 00:00:27,390 --> 00:00:31,949 trade and art historian and curator but 13 00:00:30,330 --> 00:00:35,370 she's also the founder and executive 14 00:00:31,949 --> 00:00:38,399 director of Arts Philadelphia a small 15 00:00:35,370 --> 00:00:40,469 nonprofit dedicated to enhancing quality 16 00:00:38,399 --> 00:00:42,540 of life for people living with dementia 17 00:00:40,469 --> 00:00:43,950 in the Greater Philadelphia region 18 00:00:42,540 --> 00:00:46,079 sounds familiar 19 00:00:43,950 --> 00:00:48,120 she recently launched a new 20 00:00:46,079 --> 00:00:50,789 collaboration that I'm excited to hear 21 00:00:48,120 --> 00:00:53,610 more about Priscilla Delphia is Thomas 22 00:00:50,789 --> 00:00:56,430 Jefferson University called arts at Jeff 23 00:00:53,610 --> 00:00:59,309 in which people living with dementia and 24 00:00:56,430 --> 00:01:02,100 their care partners volunteer as the 25 00:00:59,309 --> 00:01:04,680 mentors for medical and other health 26 00:01:02,100 --> 00:01:08,420 professions at the university please 27 00:01:04,680 --> 00:01:08,420 help me in welcoming up Susan Shepherd 28 00:01:11,900 --> 00:01:18,540 okay so the burning question is can you 29 00:01:14,729 --> 00:01:21,210 even see me okay 30 00:01:18,540 --> 00:01:25,890 it is a real privilege and it's a little 31 00:01:21,210 --> 00:01:30,360 scary to have this spot on the program 32 00:01:25,890 --> 00:01:32,729 first of all I want to thank Jessica for 33 00:01:30,360 --> 00:01:36,869 inviting me I want to thank Brittany and 34 00:01:32,729 --> 00:01:40,460 Jessica for an extraordinary conference 35 00:01:36,869 --> 00:01:40,460 I don't know 36 00:01:40,940 --> 00:01:46,490 I don't know about the rest of you but 37 00:01:44,090 --> 00:01:49,030 I've gone to a lot of conferences I've 38 00:01:46,490 --> 00:01:51,680 organized a few conferences and this I 39 00:01:49,030 --> 00:01:53,030 still think they're not telling the 40 00:01:51,680 --> 00:01:58,400 truth when they say they haven't done 41 00:01:53,030 --> 00:01:59,060 this before however to get a little more 42 00:01:58,400 --> 00:02:03,400 serious 43 00:01:59,060 --> 00:02:06,170 so my mandate from Jessica was to 44 00:02:03,400 --> 00:02:08,810 encourage us to think at this point in 45 00:02:06,170 --> 00:02:12,980 the conference as we're heading home to 46 00:02:08,810 --> 00:02:17,470 get back into delivering programs why is 47 00:02:12,980 --> 00:02:24,140 it important for us to do what we do and 48 00:02:17,470 --> 00:02:26,180 I'm going to do my best to at least talk 49 00:02:24,140 --> 00:02:28,430 about some of the reasons that I think 50 00:02:26,180 --> 00:02:31,670 it's so important that you all do what 51 00:02:28,430 --> 00:02:36,200 you do you see the title of the talk I 52 00:02:31,670 --> 00:02:39,320 want to start by asking you if you were 53 00:02:36,200 --> 00:02:44,270 to define the term empathy what does 54 00:02:39,320 --> 00:02:49,640 empathy mean to you the field for others 55 00:02:44,270 --> 00:02:51,920 wonderful yeah walk in another's shoes 56 00:02:49,640 --> 00:02:54,190 to feel for others to walk in another's 57 00:02:51,920 --> 00:02:54,190 shoes 58 00:02:58,790 --> 00:03:08,370 mmm wonderful so it's not necessarily 59 00:03:04,410 --> 00:03:10,200 that we need or even could fully 60 00:03:08,370 --> 00:03:13,920 understand what someone else is going 61 00:03:10,200 --> 00:03:16,410 through but we need to understand their 62 00:03:13,920 --> 00:03:22,550 experience of what they're going through 63 00:03:16,410 --> 00:03:22,550 wonderful anybody else yeah Oh what 64 00:03:24,490 --> 00:03:27,270 hi 65 00:03:29,250 --> 00:03:35,920 absolutely so it's really hard to have 66 00:03:33,549 --> 00:03:39,810 empathy if you're not mindful if you're 67 00:03:35,920 --> 00:03:39,810 not intentional well 68 00:03:39,940 --> 00:03:51,980 yes yes yeah absolutely yes ah beautiful 69 00:03:46,550 --> 00:03:56,090 to listen well so wonderful so those 70 00:03:51,980 --> 00:03:57,520 definitions are hanging in the air as we 71 00:03:56,090 --> 00:04:00,500 move forward 72 00:03:57,520 --> 00:04:03,230 museums roles as community cornerstones 73 00:04:00,500 --> 00:04:06,230 and the related subject of museums 74 00:04:03,230 --> 00:04:09,440 ethical responsibility to serve all 75 00:04:06,230 --> 00:04:11,750 visitors with empathy are two subjects 76 00:04:09,440 --> 00:04:13,580 near and dear to my heart you've heard 77 00:04:11,750 --> 00:04:15,709 I'm an art historian by training I've 78 00:04:13,580 --> 00:04:18,729 spent most of my career as a curator and 79 00:04:15,709 --> 00:04:21,590 museum educator and I've taught 80 00:04:18,729 --> 00:04:24,620 college-level courses in art history 81 00:04:21,590 --> 00:04:27,710 Museum Studies visual studies so the 82 00:04:24,620 --> 00:04:31,210 ways in which viewers and objects 83 00:04:27,710 --> 00:04:35,030 interact with each other and the ways 84 00:04:31,210 --> 00:04:37,400 most importantly in which museums can 85 00:04:35,030 --> 00:04:40,790 enrich and deepen those interactions 86 00:04:37,400 --> 00:04:44,350 have always been a primary concern to me 87 00:04:40,790 --> 00:04:47,300 that's both in my scholarship and in 88 00:04:44,350 --> 00:04:51,620 everyday practice in my encounters with 89 00:04:47,300 --> 00:04:54,830 visitors and with objects I want to 90 00:04:51,620 --> 00:04:58,300 begin the conversation today with a case 91 00:04:54,830 --> 00:05:02,990 that has been in the news a lot recently 92 00:04:58,300 --> 00:05:05,780 okay you already know about it well 93 00:05:02,990 --> 00:05:07,700 we'll see so for those of you who don't 94 00:05:05,780 --> 00:05:10,669 know about it this is a controversy 95 00:05:07,700 --> 00:05:13,580 surrounding a piece called scaffold a 96 00:05:10,669 --> 00:05:16,430 work by the LOS angeles-based artist Sam 97 00:05:13,580 --> 00:05:18,430 Durant and I'm showing you here and 98 00:05:16,430 --> 00:05:21,830 we'll show you a succession of 99 00:05:18,430 --> 00:05:26,000 photographs of the various installations 100 00:05:21,830 --> 00:05:29,390 of this piece it was installed first in 101 00:05:26,000 --> 00:05:33,320 several sites in Europe there is a 102 00:05:29,390 --> 00:05:35,720 photograph of the whole piece and now 103 00:05:33,320 --> 00:05:40,190 you're walking up one of those sets of 104 00:05:35,720 --> 00:05:44,990 stairs that you saw and you have reached 105 00:05:40,190 --> 00:05:47,630 a platform and this of course is a 106 00:05:44,990 --> 00:05:50,409 includes a photograph showing people 107 00:05:47,630 --> 00:05:52,880 inhabiting the space of this sculpture 108 00:05:50,409 --> 00:05:55,490 just about a week ago the 109 00:05:52,880 --> 00:05:58,180 LA Times round a story in its Arts and 110 00:05:55,490 --> 00:06:00,830 Culture section that opened this way a 111 00:05:58,180 --> 00:06:04,040 controversial sculpture inspired by 112 00:06:00,830 --> 00:06:07,250 gallows used in prominent US government 113 00:06:04,040 --> 00:06:10,010 executions including the mass execution 114 00:06:07,250 --> 00:06:14,600 of 38 Dakota Indians in Mankato 115 00:06:10,010 --> 00:06:16,610 Minnesota in 1862 will be removed from 116 00:06:14,600 --> 00:06:19,940 the sculpture garden at the Walker Art 117 00:06:16,610 --> 00:06:23,570 Center in Minneapolis and ceremonially 118 00:06:19,940 --> 00:06:26,630 burned after generating an outcry among 119 00:06:23,570 --> 00:06:29,300 members of Native American groups the 120 00:06:26,630 --> 00:06:31,610 sculpture had previously been erected at 121 00:06:29,300 --> 00:06:34,310 the document exhibition in Germany in 122 00:06:31,610 --> 00:06:38,240 2012 and Jupiter Artland 123 00:06:34,310 --> 00:06:40,190 in Scotland in 2014 the piece was set to 124 00:06:38,240 --> 00:06:42,710 be one of the new featured works in the 125 00:06:40,190 --> 00:06:44,120 Minneapolis sculpture garden a public 126 00:06:42,710 --> 00:06:47,570 art park that has been under renovation 127 00:06:44,120 --> 00:06:52,210 since 2015 and was originally scheduled 128 00:06:47,570 --> 00:06:55,340 to reopen June 3rd the crux of this case 129 00:06:52,210 --> 00:06:58,040 this is my voice coming back the crux of 130 00:06:55,340 --> 00:07:01,340 this case has generally been situated by 131 00:06:58,040 --> 00:07:04,280 commenting by commentators within the 132 00:07:01,340 --> 00:07:07,130 discourse of appropriation questioning 133 00:07:04,280 --> 00:07:09,530 does an artist from outside a particular 134 00:07:07,130 --> 00:07:11,840 racial or ethnic community have the 135 00:07:09,530 --> 00:07:15,380 right to appropriate that community 136 00:07:11,840 --> 00:07:16,970 stories and retell or comment on them so 137 00:07:15,380 --> 00:07:19,550 for example the New York Times published 138 00:07:16,970 --> 00:07:23,450 an article with the headline Emmett 139 00:07:19,550 --> 00:07:27,200 kills coffin a hangman scaffold and a 140 00:07:23,450 --> 00:07:30,590 debate over cultural appropriation but 141 00:07:27,200 --> 00:07:33,100 it seems to me that at its core the case 142 00:07:30,590 --> 00:07:36,350 of scaffold is more fundamentally about 143 00:07:33,100 --> 00:07:39,470 empathy among human beings and the 144 00:07:36,350 --> 00:07:41,300 responsibility of a museum to fulfill 145 00:07:39,470 --> 00:07:44,690 its obligations at the community 146 00:07:41,300 --> 00:07:47,480 cornerstone scaffolds artist Sam Durant 147 00:07:44,690 --> 00:07:49,190 himself indirectly suggestive in a 148 00:07:47,480 --> 00:07:50,770 statement he posted to the Walker Art 149 00:07:49,190 --> 00:07:53,420 Center blog 150 00:07:50,770 --> 00:07:55,970 Durant writes I made scaffold as a 151 00:07:53,420 --> 00:07:57,830 learning space for people like me white 152 00:07:55,970 --> 00:08:00,410 people who have not suffered the effects 153 00:07:57,830 --> 00:08:02,630 of a white supremacist society and who 154 00:08:00,410 --> 00:08:05,780 may not consciously know that it exists 155 00:08:02,630 --> 00:08:07,100 it has been my belief that white artists 156 00:08:05,780 --> 00:08:08,960 need to address 157 00:08:07,100 --> 00:08:11,360 use of white supremacy and its 158 00:08:08,960 --> 00:08:13,730 institutional manifestations White's 159 00:08:11,360 --> 00:08:15,560 created the concept of race and have 160 00:08:13,730 --> 00:08:18,320 used it to maintain dominance for 161 00:08:15,560 --> 00:08:22,280 centuries White's must be involved in 162 00:08:18,320 --> 00:08:24,440 its dismantling however your protests 163 00:08:22,280 --> 00:08:27,020 have shown me that I made a grave 164 00:08:24,440 --> 00:08:29,480 miscalculation in how my work can be 165 00:08:27,020 --> 00:08:33,110 received by those in a particular 166 00:08:29,480 --> 00:08:35,510 community in focusing on my position as 167 00:08:33,110 --> 00:08:38,360 a white artist making work for that 168 00:08:35,510 --> 00:08:40,760 audience I fail to understand what the 169 00:08:38,360 --> 00:08:43,750 inclusion of the Dakota 38 in the 170 00:08:40,760 --> 00:08:46,550 sculptor could mean for Dakota people I 171 00:08:43,750 --> 00:08:48,770 offer my deepest apologies for my 172 00:08:46,550 --> 00:08:51,740 thoughtlessness I should have reached 173 00:08:48,770 --> 00:08:53,210 out to the Dakota community the moment 174 00:08:51,740 --> 00:08:55,640 that I knew that a sculpture would be 175 00:08:53,210 --> 00:09:01,160 exhibited at the Walker Art Center in 176 00:08:55,640 --> 00:09:02,600 proximity to Mankato so 15 years ago the 177 00:09:01,160 --> 00:09:05,570 Board of Directors of the American 178 00:09:02,600 --> 00:09:08,030 Association of museums now the Alliance 179 00:09:05,570 --> 00:09:11,450 passed a museums and community 180 00:09:08,030 --> 00:09:14,060 resolution declaring that museums are 181 00:09:11,450 --> 00:09:15,770 community cornerstones they are cultural 182 00:09:14,060 --> 00:09:18,530 symbols and contributors to community 183 00:09:15,770 --> 00:09:20,750 enterprise and providers of educational 184 00:09:18,530 --> 00:09:23,060 experiences they are treasured places 185 00:09:20,750 --> 00:09:26,870 where memories are created and shared 186 00:09:23,060 --> 00:09:29,270 but museums can also transform the way 187 00:09:26,870 --> 00:09:31,790 people view the world they foster 188 00:09:29,270 --> 00:09:34,070 lifelong learning and encourage the 189 00:09:31,790 --> 00:09:36,770 expression of differing points of view 190 00:09:34,070 --> 00:09:39,560 these strengths accord museums the 191 00:09:36,770 --> 00:09:42,650 opportunity to assume an expanded civic 192 00:09:39,560 --> 00:09:45,110 role in society the list of operating 193 00:09:42,650 --> 00:09:48,140 principles elaborated further that 194 00:09:45,110 --> 00:09:50,840 museums are defining new relationships 195 00:09:48,140 --> 00:09:53,900 with communities based upon expanded 196 00:09:50,840 --> 00:09:56,750 mutual understanding recognition of 197 00:09:53,900 --> 00:09:59,270 common concerns and interests and a 198 00:09:56,750 --> 00:10:02,120 desire to collaborate for the benefit of 199 00:09:59,270 --> 00:10:05,620 the community collaboration between 200 00:10:02,120 --> 00:10:09,170 museums and communities requires sharing 201 00:10:05,620 --> 00:10:12,830 creativity vision responsibility and 202 00:10:09,170 --> 00:10:15,350 resources then just a little more than a 203 00:10:12,830 --> 00:10:18,920 year ago the Alliance announced a new 204 00:10:15,350 --> 00:10:20,720 strategic plan promoting diversity 205 00:10:18,920 --> 00:10:23,480 equity excessive 206 00:10:20,720 --> 00:10:26,540 ability and inclusion in all aspects of 207 00:10:23,480 --> 00:10:28,279 museum structure and programming this 208 00:10:26,540 --> 00:10:30,920 four-year plan provides the following 209 00:10:28,279 --> 00:10:33,259 definitions for diversity and inclusion 210 00:10:30,920 --> 00:10:35,750 so diversity the quality of being 211 00:10:33,259 --> 00:10:38,720 different or unique at the individual or 212 00:10:35,750 --> 00:10:40,970 group level this includes age ethnicity 213 00:10:38,720 --> 00:10:43,540 gender gender identity language 214 00:10:40,970 --> 00:10:45,949 differences nationality parental status 215 00:10:43,540 --> 00:10:48,829 physical mental and developmental 216 00:10:45,949 --> 00:10:52,220 abilities race religion sexual 217 00:10:48,829 --> 00:10:54,949 orientation skin color socioeconomic 218 00:10:52,220 --> 00:10:57,410 status education work and behavioral 219 00:10:54,949 --> 00:10:59,889 styles the perspectives of each 220 00:10:57,410 --> 00:11:03,519 individual shaped by their nation 221 00:10:59,889 --> 00:11:07,910 experiences and culture and more and 222 00:11:03,519 --> 00:11:10,819 then inclusion diversity always exists 223 00:11:07,910 --> 00:11:13,490 in social systems inclusion on the other 224 00:11:10,819 --> 00:11:16,069 hand must be created in order to 225 00:11:13,490 --> 00:11:18,939 leverage diversity an environment must 226 00:11:16,069 --> 00:11:22,310 be created where people feel supported 227 00:11:18,939 --> 00:11:26,300 listened to and able to do their 228 00:11:22,310 --> 00:11:31,430 personal best let's listen to that again 229 00:11:26,300 --> 00:11:35,509 so people feel supported they feel 230 00:11:31,430 --> 00:11:39,079 listened to and they feel able to do 231 00:11:35,509 --> 00:11:42,139 their personal best I share this with 232 00:11:39,079 --> 00:11:44,329 you to emphasize the point that you're 233 00:11:42,139 --> 00:11:46,370 already aware of I'm sure that the 234 00:11:44,329 --> 00:11:48,559 organization that represents museum 235 00:11:46,370 --> 00:11:50,750 professionals and accredits museums 236 00:11:48,559 --> 00:11:52,610 throughout the United States has for 237 00:11:50,750 --> 00:11:54,980 more than a decade prioritized the 238 00:11:52,610 --> 00:12:00,019 functions of inclusiveness and community 239 00:11:54,980 --> 00:12:06,910 engagement among its numbers so 240 00:12:00,019 --> 00:12:10,579 inclusiveness is equity it's empathy and 241 00:12:06,910 --> 00:12:13,850 we'll get to the dignity part so 242 00:12:10,579 --> 00:12:14,300 sticking with scaffold just a little bit 243 00:12:13,850 --> 00:12:17,180 longer 244 00:12:14,300 --> 00:12:19,459 it's against this backdrop of museum 245 00:12:17,180 --> 00:12:22,220 standards and ethics that we hear the 246 00:12:19,459 --> 00:12:23,930 voice of Kate being a Dakota woman and 247 00:12:22,220 --> 00:12:26,089 historian who works as a community 248 00:12:23,930 --> 00:12:29,360 liaison for the Minnesota Historical 249 00:12:26,089 --> 00:12:32,329 Society being has said of the scaffold 250 00:12:29,360 --> 00:12:34,430 controversy I don't think the Walker or 251 00:12:32,329 --> 00:12:36,860 the artist took into consideration 252 00:12:34,430 --> 00:12:39,560 what kind of impact a structure like 253 00:12:36,860 --> 00:12:41,990 that would have on a community of people 254 00:12:39,560 --> 00:12:45,410 who have been impacted by historical 255 00:12:41,990 --> 00:12:47,690 trauma Olga V so director of the Walker 256 00:12:45,410 --> 00:12:50,420 Art Center sounded a strikingly similar 257 00:12:47,690 --> 00:12:52,970 note after a mediated agreement was 258 00:12:50,420 --> 00:12:55,279 reached by the Dakota elders the museum 259 00:12:52,970 --> 00:12:58,130 the artist and other parties to this 260 00:12:55,279 --> 00:13:00,230 case and she wrote there's no question 261 00:12:58,130 --> 00:13:02,360 that the Walker's process in placing the 262 00:13:00,230 --> 00:13:05,480 sculpture in a Minneapolis sculpture 263 00:13:02,360 --> 00:13:07,670 garden with flawed I apologize that we 264 00:13:05,480 --> 00:13:09,410 were not sufficiently aware of the 265 00:13:07,670 --> 00:13:11,750 implications of its placement or 266 00:13:09,410 --> 00:13:13,790 sympathetic to the pain and suffering 267 00:13:11,750 --> 00:13:16,399 that it would elicit we are deeply 268 00:13:13,790 --> 00:13:18,709 deeply sorry and pledged to be better 269 00:13:16,399 --> 00:13:22,160 stewards of our relationship with 270 00:13:18,709 --> 00:13:24,470 communities going forward in other words 271 00:13:22,160 --> 00:13:27,830 it seems reasonable to conclude that in 272 00:13:24,470 --> 00:13:30,440 this case and with no ill intent which 273 00:13:27,830 --> 00:13:33,110 is important to say the Walker Arts 274 00:13:30,440 --> 00:13:34,940 Center neither demonstrated the expanded 275 00:13:33,110 --> 00:13:37,399 mutual understanding recognition of 276 00:13:34,940 --> 00:13:39,200 common concerns and interests and a 277 00:13:37,399 --> 00:13:41,750 desire to collaborate for the benefit of 278 00:13:39,200 --> 00:13:44,959 the community that was enshrined in the 279 00:13:41,750 --> 00:13:47,029 communities and museums resolution nor 280 00:13:44,959 --> 00:13:50,029 did it create an environment where 281 00:13:47,029 --> 00:13:53,120 people feel supported listen to and able 282 00:13:50,029 --> 00:13:54,470 to do their personal best okay at this 283 00:13:53,120 --> 00:13:56,990 point you are probably thinking to 284 00:13:54,470 --> 00:13:58,190 yourself have I taken a wrong turn 285 00:13:56,990 --> 00:14:00,410 somewhere and gone to the wrong 286 00:13:58,190 --> 00:14:02,750 conference what what does any of this 287 00:14:00,410 --> 00:14:05,240 have to do with equity and empathy in 288 00:14:02,750 --> 00:14:08,060 museum programs for people living with 289 00:14:05,240 --> 00:14:09,560 dementia some of you are no doubt 290 00:14:08,060 --> 00:14:11,360 familiar with a slogan that is 291 00:14:09,560 --> 00:14:13,550 ubiquitous throughout the disability 292 00:14:11,360 --> 00:14:16,580 community nothing about us without us 293 00:14:13,550 --> 00:14:19,339 it's a slogan that rejects a condition 294 00:14:16,580 --> 00:14:22,520 of perpetual exclusion not being heard 295 00:14:19,339 --> 00:14:25,730 or seen not being valued not being 296 00:14:22,520 --> 00:14:28,339 permitted let alone assumed to speak for 297 00:14:25,730 --> 00:14:30,170 oneself it's the condition that 298 00:14:28,339 --> 00:14:32,570 underlies the protests that have 299 00:14:30,170 --> 00:14:35,660 resulted in the dismantling of scaffold 300 00:14:32,570 --> 00:14:38,390 and it's one of the conditions 301 00:14:35,660 --> 00:14:41,480 concomitant with living with a dementia 302 00:14:38,390 --> 00:14:43,700 diagnosis in today's world and this I 303 00:14:41,480 --> 00:14:46,459 want to say is the fundamental 304 00:14:43,700 --> 00:14:48,170 connection between the case of scaffold 305 00:14:46,459 --> 00:14:50,180 and the program's 306 00:14:48,170 --> 00:14:55,310 services that you all commit to every 307 00:14:50,180 --> 00:14:57,589 day a little bit about art were a small 308 00:14:55,310 --> 00:15:00,320 mid-atlantic nonprofit that offers 309 00:14:57,589 --> 00:15:03,139 opportunities for self-expression and 310 00:15:00,320 --> 00:15:05,260 the rebuilding of self-esteem to people 311 00:15:03,139 --> 00:15:08,089 with dementia and their care partners 312 00:15:05,260 --> 00:15:11,180 through interactions around arts and 313 00:15:08,089 --> 00:15:14,329 culture based programming I founded arts 314 00:15:11,180 --> 00:15:16,160 Philadelphia in 2013 on the conviction 315 00:15:14,329 --> 00:15:18,019 that people living with dementia should 316 00:15:16,160 --> 00:15:20,089 be accorded the benefits of well-being 317 00:15:18,019 --> 00:15:21,850 and quality of life that others enjoy 318 00:15:20,089 --> 00:15:24,709 kind of a no-brainer 319 00:15:21,850 --> 00:15:26,750 we are committed at arts Philadelphia to 320 00:15:24,709 --> 00:15:28,790 supporting and celebrating people with 321 00:15:26,750 --> 00:15:31,699 dementia and their care partners as 322 00:15:28,790 --> 00:15:35,540 valued members of our wider creative 323 00:15:31,699 --> 00:15:37,610 community one of our regular program 324 00:15:35,540 --> 00:15:40,100 participants was interviewed last year 325 00:15:37,610 --> 00:15:43,279 on National Public Radio about his 326 00:15:40,100 --> 00:15:46,070 experiences of living with dementia Carl 327 00:15:43,279 --> 00:15:49,420 D is a retired physicist diagnosed with 328 00:15:46,070 --> 00:15:52,070 Alzheimer's in 2014 he describes 329 00:15:49,420 --> 00:15:54,620 analyzing his growing inability to draw 330 00:15:52,070 --> 00:15:58,310 a clock or to use clocks to tell time 331 00:15:54,620 --> 00:16:00,920 and then retraining himself to tell time 332 00:15:58,310 --> 00:16:03,170 based on his deconstruction of the 333 00:16:00,920 --> 00:16:07,040 layers of meaning embedded in a clock 334 00:16:03,170 --> 00:16:09,500 face Carl's capacity for imaginative and 335 00:16:07,040 --> 00:16:13,250 complex reasoning it's still very much 336 00:16:09,500 --> 00:16:15,110 in evidence as he says while he may have 337 00:16:13,250 --> 00:16:18,410 retaught himself how to read a clock 338 00:16:15,110 --> 00:16:20,750 there is no path back to when he could 339 00:16:18,410 --> 00:16:23,540 take such skills for granted he can only 340 00:16:20,750 --> 00:16:26,870 focus on moving forward building on his 341 00:16:23,540 --> 00:16:28,910 abilities that persist it's often 342 00:16:26,870 --> 00:16:31,069 assumed that people with dementia are 343 00:16:28,910 --> 00:16:33,339 incapable of acquiring new skills or 344 00:16:31,069 --> 00:16:37,130 knowledge we of course know differently 345 00:16:33,339 --> 00:16:40,069 Carl embodies the capacity for finding a 346 00:16:37,130 --> 00:16:43,850 way forward that makes meaning in and of 347 00:16:40,069 --> 00:16:46,639 his post-diagnosis existence this 348 00:16:43,850 --> 00:16:49,850 paradigm shift from incapacity to 349 00:16:46,639 --> 00:16:52,910 capacity from dead end to a way forward 350 00:16:49,850 --> 00:16:55,279 is the basis for the collaboration that 351 00:16:52,910 --> 00:16:58,190 Jessica mentioned a new collaboration 352 00:16:55,279 --> 00:17:01,040 between arts Philadelphia and Thomas 353 00:16:58,190 --> 00:17:03,139 Jefferson University which if you don't 354 00:17:01,040 --> 00:17:05,240 know that is one 355 00:17:03,139 --> 00:17:08,419 the country's most vulnerable medical 356 00:17:05,240 --> 00:17:10,370 schools our Philadelphia SPRO grams and 357 00:17:08,419 --> 00:17:13,010 museum galleries are becoming a proving 358 00:17:10,370 --> 00:17:14,929 ground through this collaboration for 359 00:17:13,010 --> 00:17:18,500 how profoundly we can realize that 360 00:17:14,929 --> 00:17:20,959 paradigm shift in art suggests and arts 361 00:17:18,500 --> 00:17:22,730 and dementia mentoring initiative the 362 00:17:20,959 --> 00:17:24,740 medical and other healthcare profession 363 00:17:22,730 --> 00:17:27,650 students from across the university are 364 00:17:24,740 --> 00:17:30,230 learning from a new cohort of mentors 365 00:17:27,650 --> 00:17:32,929 people living with dementia and their 366 00:17:30,230 --> 00:17:35,840 care partners the promotional blurb we 367 00:17:32,929 --> 00:17:38,899 used for the program to attract mentors 368 00:17:35,840 --> 00:17:41,480 describes it in this way do you ever 369 00:17:38,899 --> 00:17:44,210 feel that if your doctor had time to get 370 00:17:41,480 --> 00:17:46,970 to know you better she would be able to 371 00:17:44,210 --> 00:17:49,250 better care for you Thomas Jefferson 372 00:17:46,970 --> 00:17:51,380 University and arts Philadelphia have 373 00:17:49,250 --> 00:17:53,779 launched a new program together and we 374 00:17:51,380 --> 00:17:56,029 hope you'll be a part of it through our 375 00:17:53,779 --> 00:17:58,220 suggests a Jefferson student will have 376 00:17:56,029 --> 00:18:00,980 the chance to spend time getting to know 377 00:17:58,220 --> 00:18:03,559 you or your loved one better as a person 378 00:18:00,980 --> 00:18:06,350 you will have the chance to mentor that 379 00:18:03,559 --> 00:18:08,899 student about what it means to you to 380 00:18:06,350 --> 00:18:10,549 live with dementia art will be the 381 00:18:08,899 --> 00:18:13,100 vehicle that brings you together and 382 00:18:10,549 --> 00:18:15,470 together you may well change forever the 383 00:18:13,100 --> 00:18:19,460 way things work it's a little 384 00:18:15,470 --> 00:18:22,429 overdramatic but there you are so what 385 00:18:19,460 --> 00:18:24,679 does this program seem to mean and what 386 00:18:22,429 --> 00:18:27,940 might it argue for people living with 387 00:18:24,679 --> 00:18:30,559 dementia and for their care partners 388 00:18:27,940 --> 00:18:32,149 there has been extensive research and 389 00:18:30,559 --> 00:18:35,059 much written in the last decade 390 00:18:32,149 --> 00:18:37,250 regarding the various ways in which 391 00:18:35,059 --> 00:18:40,309 people across the globe who are living 392 00:18:37,250 --> 00:18:42,830 with dementia define quality of life a 393 00:18:40,309 --> 00:18:44,779 number of studies have specifically 394 00:18:42,830 --> 00:18:47,600 focused on the role of dignity 395 00:18:44,779 --> 00:18:50,630 preservation as a prime contributor to 396 00:18:47,600 --> 00:18:54,230 quality of life for instance van Gannett 397 00:18:50,630 --> 00:18:56,120 at El noted in 2014 that a number of 398 00:18:54,230 --> 00:18:58,250 qualitative studies have indicated that 399 00:18:56,120 --> 00:19:01,399 the way in which individuals with 400 00:18:58,250 --> 00:19:03,559 dementia are treated by others has a 401 00:19:01,399 --> 00:19:06,529 significant impact on their experience 402 00:19:03,559 --> 00:19:10,669 of the disease and that the views of and 403 00:19:06,529 --> 00:19:14,640 treatment by others can perhaps be seen 404 00:19:10,669 --> 00:19:18,780 as the primary cause of the loss of self 405 00:19:14,640 --> 00:19:21,690 self-esteem a 2010 study by hagas dot at 406 00:19:18,780 --> 00:19:24,060 all assessing norwegian nursing home 407 00:19:21,690 --> 00:19:25,830 residents experiences of dignity by 408 00:19:24,060 --> 00:19:28,740 means of interviews with residents 409 00:19:25,830 --> 00:19:31,020 living with dementia yielded recurring 410 00:19:28,740 --> 00:19:34,160 theoretical themes relating to dignity 411 00:19:31,020 --> 00:19:36,900 such as dignity related to confirmation 412 00:19:34,160 --> 00:19:40,230 dignity related to freedom dignity 413 00:19:36,900 --> 00:19:43,650 related to belonging one interviewee 414 00:19:40,230 --> 00:19:48,000 declared the most important is that they 415 00:19:43,650 --> 00:19:50,850 listen to what I have to say the study's 416 00:19:48,000 --> 00:19:53,490 authors conclude the reason why we often 417 00:19:50,850 --> 00:19:55,770 think that persons with dementia lack 418 00:19:53,490 --> 00:19:58,440 the ability to make autonomous choices 419 00:19:55,770 --> 00:20:01,260 in their daily life may be because we 420 00:19:58,440 --> 00:20:03,690 often see the diagnosis with all the 421 00:20:01,260 --> 00:20:05,940 problems that follow the diagnosis of 422 00:20:03,690 --> 00:20:09,390 dementia becomes the master status of 423 00:20:05,940 --> 00:20:11,550 the person not being seen as a person or 424 00:20:09,390 --> 00:20:14,220 only being seen as a member of a group 425 00:20:11,550 --> 00:20:17,490 for instance number of a patient group 426 00:20:14,220 --> 00:20:20,520 may be experienced as violation of a 427 00:20:17,490 --> 00:20:23,220 person's dignity to avoid this threat to 428 00:20:20,520 --> 00:20:26,640 dignity we should to a greater extent 429 00:20:23,220 --> 00:20:29,220 ask the persons with dementia what they 430 00:20:26,640 --> 00:20:32,580 think is important in order to live a 431 00:20:29,220 --> 00:20:35,160 good life and see them as experts on 432 00:20:32,580 --> 00:20:37,710 their own lives we should confirm the 433 00:20:35,160 --> 00:20:40,650 person and his or her individual 434 00:20:37,710 --> 00:20:43,350 identity which exists behind the disease 435 00:20:40,650 --> 00:20:46,470 I just want to bring this slide back 436 00:20:43,350 --> 00:20:50,360 because you may hear echoes of the 437 00:20:46,470 --> 00:20:52,980 strategic plan in these studies 438 00:20:50,360 --> 00:20:56,340 remembering that feeling supported 439 00:20:52,980 --> 00:20:58,110 feeling listened to feeling able to do 440 00:20:56,340 --> 00:21:01,080 one's personal best there are 441 00:20:58,110 --> 00:21:04,410 connections here it is against the 442 00:21:01,080 --> 00:21:06,690 backdrop of an indirect response to the 443 00:21:04,410 --> 00:21:09,180 research regarding dignity preservation 444 00:21:06,690 --> 00:21:11,940 and other crucial quality of life 445 00:21:09,180 --> 00:21:13,800 factors defined in large part by people 446 00:21:11,940 --> 00:21:15,960 living with dementia and their care 447 00:21:13,800 --> 00:21:18,270 partners that we've designed our 448 00:21:15,960 --> 00:21:21,390 programs in general and arts at Jeff in 449 00:21:18,270 --> 00:21:24,120 particular in relation to which we 450 00:21:21,390 --> 00:21:26,460 assess the program's efficacy and impact 451 00:21:24,120 --> 00:21:28,260 and I just want to show you a few more 452 00:21:26,460 --> 00:21:28,680 slides from the program to give you a 453 00:21:28,260 --> 00:21:31,710 sound 454 00:21:28,680 --> 00:21:34,020 of what it looks like so this is a 455 00:21:31,710 --> 00:21:38,550 one-on-one conversation between a mentor 456 00:21:34,020 --> 00:21:42,150 and her student in some cases we do two 457 00:21:38,550 --> 00:21:43,680 on two if the Care Partner and or the 458 00:21:42,150 --> 00:21:47,490 person with dementia feel more 459 00:21:43,680 --> 00:21:49,290 comfortable mentoring together than both 460 00:21:47,490 --> 00:21:53,820 of their students fit with both of them 461 00:21:49,290 --> 00:21:57,630 in this case Len and Eve Eve 462 00:21:53,820 --> 00:21:59,880 is entering into perhaps late middle to 463 00:21:57,630 --> 00:22:01,740 early late stage and so she had 464 00:21:59,880 --> 00:22:03,690 difficulties talking sometimes other 465 00:22:01,740 --> 00:22:07,020 times she sneaks in full beautiful 466 00:22:03,690 --> 00:22:12,120 sentences it's amazing and Carl again 467 00:22:07,020 --> 00:22:14,730 holding forth with his students so the 468 00:22:12,120 --> 00:22:17,310 insights of our participants above all 469 00:22:14,730 --> 00:22:20,790 will tell us where we need to focus our 470 00:22:17,310 --> 00:22:24,180 efforts now and in the future I'm 471 00:22:20,790 --> 00:22:26,790 including here some documented responses 472 00:22:24,180 --> 00:22:29,610 from studies that have taken place in 473 00:22:26,790 --> 00:22:33,050 England Paul kamek has done a great deal 474 00:22:29,610 --> 00:22:36,360 of work looking at the benefits for 475 00:22:33,050 --> 00:22:38,850 museums caregivers and people living 476 00:22:36,360 --> 00:22:40,260 with dementia of gallery based programs 477 00:22:38,850 --> 00:22:43,260 like the ones we've been talking about 478 00:22:40,260 --> 00:22:46,170 Paul quotes in a couple of studies that 479 00:22:43,260 --> 00:22:48,450 he's done with colleagues I was treated 480 00:22:46,170 --> 00:22:51,420 so well at the Art Gallery it made me 481 00:22:48,450 --> 00:22:54,090 feel I wasn't a dream I've never been 482 00:22:51,420 --> 00:22:58,920 made to feel this welcome in healthcare 483 00:22:54,090 --> 00:23:01,170 or social services and quoted later in 484 00:22:58,920 --> 00:23:03,600 the study I was very conscious at the 485 00:23:01,170 --> 00:23:06,450 gallery that we were people working 486 00:23:03,600 --> 00:23:09,000 together and were treated as equals and 487 00:23:06,450 --> 00:23:11,160 not as a person with a memory problem 488 00:23:09,000 --> 00:23:14,820 but as two people with something to 489 00:23:11,160 --> 00:23:16,980 contribute and that was a good thing the 490 00:23:14,820 --> 00:23:19,050 third quotation is from one of our 491 00:23:16,980 --> 00:23:22,800 program participants she's a Care 492 00:23:19,050 --> 00:23:24,930 Partner for her father and she writes I 493 00:23:22,800 --> 00:23:27,080 feel so lucky to be able to participate 494 00:23:24,930 --> 00:23:30,300 in these museum programs alongside 495 00:23:27,080 --> 00:23:33,150 everyone those with the so-called memory 496 00:23:30,300 --> 00:23:35,820 impairments only enhance my experience 497 00:23:33,150 --> 00:23:38,490 I've learned so much from the entire 498 00:23:35,820 --> 00:23:42,450 group that I'm continuously blown away 499 00:23:38,490 --> 00:23:45,240 by the experience and a few 500 00:23:42,450 --> 00:23:47,520 comments from mentors about their 501 00:23:45,240 --> 00:23:49,020 experience of art suggests it's 502 00:23:47,520 --> 00:23:51,200 difficult to have meaningful 503 00:23:49,020 --> 00:23:54,000 communication that we can share anymore 504 00:23:51,200 --> 00:23:56,910 looking and talking about the art we 505 00:23:54,000 --> 00:23:59,250 were able to talk like a couple again my 506 00:23:56,910 --> 00:24:01,770 wife really liked her student and I 507 00:23:59,250 --> 00:24:05,220 really felt that she was really helping 508 00:24:01,770 --> 00:24:08,100 him and contributing to others again his 509 00:24:05,220 --> 00:24:12,780 wife was an emergency room nurse and she 510 00:24:08,100 --> 00:24:17,460 now has primary progressive aphasia one 511 00:24:12,780 --> 00:24:19,800 of our mentors with dementia said I 512 00:24:17,460 --> 00:24:22,020 think our students got a lot from it on 513 00:24:19,800 --> 00:24:24,690 how to evaluate all aspects of a 514 00:24:22,020 --> 00:24:30,090 patient's life not just the diagnosis 515 00:24:24,690 --> 00:24:33,330 and one of the Care Partner said I only 516 00:24:30,090 --> 00:24:36,420 see good coming from this and then the 517 00:24:33,330 --> 00:24:36,930 students or just as remarkable as their 518 00:24:36,420 --> 00:24:39,630 mentors 519 00:24:36,930 --> 00:24:41,760 say it gave us an opportunity to see 520 00:24:39,630 --> 00:24:44,370 people who have dementia as more than 521 00:24:41,760 --> 00:24:46,800 just their condition I think in a busy 522 00:24:44,370 --> 00:24:49,020 clinical setting it can be all too easy 523 00:24:46,800 --> 00:24:51,480 to see a dementia patient for just that 524 00:24:49,020 --> 00:24:53,280 a dementia patient but I think because 525 00:24:51,480 --> 00:24:55,890 of this program will all be very quick 526 00:24:53,280 --> 00:24:58,380 to recognize dementia patients as people 527 00:24:55,890 --> 00:25:01,200 who had quite meaningful lives and still 528 00:24:58,380 --> 00:25:03,660 have a lot to offer and another student 529 00:25:01,200 --> 00:25:06,030 writes this program has given me so much 530 00:25:03,660 --> 00:25:10,920 to think about and so many valuable 531 00:25:06,030 --> 00:25:13,740 lessons from the mentors ultimately the 532 00:25:10,920 --> 00:25:15,780 issues we've been considering this 533 00:25:13,740 --> 00:25:20,250 afternoon and really throughout this 534 00:25:15,780 --> 00:25:24,540 superb symposium are simply put issues 535 00:25:20,250 --> 00:25:27,620 of honoring personhood and as I bring 536 00:25:24,540 --> 00:25:31,080 this to a conclusion I want to mention 537 00:25:27,620 --> 00:25:34,170 the work of Michael KITT would KITT 538 00:25:31,080 --> 00:25:37,500 would was an ordained priest to start 539 00:25:34,170 --> 00:25:40,140 with became a psychologist professor at 540 00:25:37,500 --> 00:25:43,880 Bradford University in England and he 541 00:25:40,140 --> 00:25:46,590 was actually he's been credited with 542 00:25:43,880 --> 00:25:48,840 being the first to inaugurate the term 543 00:25:46,590 --> 00:25:52,680 person-centered care in relation to 544 00:25:48,840 --> 00:25:56,130 people with dementia so a person of 545 00:25:52,680 --> 00:25:59,820 impact in our fields so he writes 546 00:25:56,130 --> 00:26:02,310 in one of his most famous books in 547 00:25:59,820 --> 00:26:05,130 dementia many aspects of the psyche that 548 00:26:02,310 --> 00:26:08,010 had for a long time been individual and 549 00:26:05,130 --> 00:26:11,190 internal are again made over to the 550 00:26:08,010 --> 00:26:14,060 interpersonal Neal you memory may have 551 00:26:11,190 --> 00:26:16,980 faded but something of the past is known 552 00:26:14,060 --> 00:26:18,830 identity remains intact because others 553 00:26:16,980 --> 00:26:21,300 hold it in place 554 00:26:18,830 --> 00:26:24,830 thoughts may have disappeared that there 555 00:26:21,300 --> 00:26:27,600 are still interpersonal prophecies 556 00:26:24,830 --> 00:26:30,270 feelings are expressed and meet a 557 00:26:27,600 --> 00:26:31,410 validating response and if there is a 558 00:26:30,270 --> 00:26:33,810 spirituality 559 00:26:31,410 --> 00:26:35,880 remember you can ordained priests it 560 00:26:33,810 --> 00:26:38,010 will most likely be of the kind that 561 00:26:35,880 --> 00:26:40,860 goober describes where the divine is 562 00:26:38,010 --> 00:26:43,740 encountered in the depth of I Val 563 00:26:40,860 --> 00:26:45,330 relating now for those of you to whom 564 00:26:43,740 --> 00:26:50,430 that sounds a little bit like 565 00:26:45,330 --> 00:26:53,580 gobbledygook the I thou versus I it 566 00:26:50,430 --> 00:26:56,120 dichotomy is a matter of personhood 567 00:26:53,580 --> 00:27:00,960 versus object hood so in an either 568 00:26:56,120 --> 00:27:04,860 relationship the attitude of the eye to 569 00:27:00,960 --> 00:27:07,440 the vow is that it is an equal 570 00:27:04,860 --> 00:27:10,440 relationship the other in the 571 00:27:07,440 --> 00:27:13,260 relationship is fully acknowledged the 572 00:27:10,440 --> 00:27:17,550 relationship the partnership is an end 573 00:27:13,260 --> 00:27:22,110 in itself and not a means to some other 574 00:27:17,550 --> 00:27:24,630 end some thing to be used the I it 575 00:27:22,110 --> 00:27:27,060 relationship on the other hand you see 576 00:27:24,630 --> 00:27:28,590 where this is going in that kind of 577 00:27:27,060 --> 00:27:31,740 relationship the attitude of the eye 578 00:27:28,590 --> 00:27:34,560 towards an it is more or less the 579 00:27:31,740 --> 00:27:37,470 attitude of an eye towards an object an 580 00:27:34,560 --> 00:27:40,320 object that is separate not an equal 581 00:27:37,470 --> 00:27:46,200 part of any kind of relationship and to 582 00:27:40,320 --> 00:27:49,830 be used either used or acted upon so you 583 00:27:46,200 --> 00:27:54,360 can see I think how deeply this relates 584 00:27:49,830 --> 00:27:58,230 to the issue of how we treat people 585 00:27:54,360 --> 00:28:00,210 living with dementia and how their care 586 00:27:58,230 --> 00:28:03,420 partners treat them and how they treat 587 00:28:00,210 --> 00:28:05,580 their care partners at the beginning of 588 00:28:03,420 --> 00:28:09,390 my talk I was privileged to introduce 589 00:28:05,580 --> 00:28:10,080 you to Carl the retired physicist NPR 590 00:28:09,390 --> 00:28:13,409 interview 591 00:28:10,080 --> 00:28:15,149 we beloved husband of Susan a newly 592 00:28:13,409 --> 00:28:18,600 emerging artist that's a whole other 593 00:28:15,149 --> 00:28:21,570 story and a person just trying to live 594 00:28:18,600 --> 00:28:24,450 his life meaningfully and navigate the 595 00:28:21,570 --> 00:28:26,549 way forward with dementia it's Carl who 596 00:28:24,450 --> 00:28:29,549 gave the talk it gave this talk its 597 00:28:26,549 --> 00:28:30,840 title and it's Carl who helps me to 598 00:28:29,549 --> 00:28:34,289 bring it to a close 599 00:28:30,840 --> 00:28:36,929 Carl reminds us all of us that our 600 00:28:34,289 --> 00:28:40,019 programs our institutions must be 601 00:28:36,929 --> 00:28:42,210 dedicated above all to ensuring that we 602 00:28:40,019 --> 00:28:45,570 treat those we serve with equity and 603 00:28:42,210 --> 00:28:49,350 empathy and that we honor their dignity 604 00:28:45,570 --> 00:28:51,419 or taking us back to scaffold in the 605 00:28:49,350 --> 00:28:54,149 words of filmmaker and director 606 00:28:51,419 --> 00:28:56,639 Sheldon wolf's child one of the most 607 00:28:54,149 --> 00:28:58,919 vocal Dakota protesters of the Walker 608 00:28:56,639 --> 00:29:01,559 Art Center installation and a 609 00:28:58,919 --> 00:29:05,309 great-grandson of one of the Dakota 38 610 00:29:01,559 --> 00:29:08,159 who's hanging it memorialized we need to 611 00:29:05,309 --> 00:29:11,760 understand that we have to look at each 612 00:29:08,159 --> 00:29:18,600 other as common human beings from the 613 00:29:11,760 --> 00:29:20,460 heart so just before we close I want to 614 00:29:18,600 --> 00:29:23,370 resize something that I think Laurel 615 00:29:20,460 --> 00:29:28,350 brought up in her talk yesterday and to 616 00:29:23,370 --> 00:29:33,000 revisit one more question and that's the 617 00:29:28,350 --> 00:29:37,620 question in museums whose responsibility 618 00:29:33,000 --> 00:29:40,250 is it in the end to ensure equity and 619 00:29:37,620 --> 00:29:40,250 empathy 620 00:29:42,310 --> 00:29:52,040 yeah and I'm sure all of us yeah well 621 00:29:49,760 --> 00:29:56,240 actually yeah the restaurant 622 00:29:52,040 --> 00:30:00,140 imagine a restaurant that does not see 623 00:29:56,240 --> 00:30:02,540 someone because they're acting out or is 624 00:30:00,140 --> 00:30:03,980 not willing to seat someone in a place 625 00:30:02,540 --> 00:30:08,150 that is going to make him or her more 626 00:30:03,980 --> 00:30:10,130 comfortable and I think probably all of 627 00:30:08,150 --> 00:30:13,580 us who have tried to make the case for 628 00:30:10,130 --> 00:30:16,070 our museums of the importance of this 629 00:30:13,580 --> 00:30:19,850 kind of work have encountered some 630 00:30:16,070 --> 00:30:24,790 roadblocks in these various areas but of 631 00:30:19,850 --> 00:30:24,790 course it has to be all of the above 632 00:30:25,390 --> 00:30:31,010 there we go 633 00:30:27,380 --> 00:30:33,650 this was a very short talk because we're 634 00:30:31,010 --> 00:30:35,630 all brain dead at this point so I'm 635 00:30:33,650 --> 00:30:37,580 happy to take any questions you have or 636 00:30:35,630 --> 00:30:51,220 to tell you more about the program but 637 00:30:37,580 --> 00:30:51,220 thank you a lot of people come to your 638 00:30:54,910 --> 00:31:00,289 final 639 00:30:56,870 --> 00:31:04,490 and it's one of our challenges when we 640 00:31:00,289 --> 00:31:10,400 first started doing programs we actually 641 00:31:04,490 --> 00:31:13,900 got referrals from and memory and if the 642 00:31:10,400 --> 00:31:16,630 Pend every counter we should who were 643 00:31:13,900 --> 00:31:20,900 fault 644 00:31:16,630 --> 00:31:23,690 then started sweating by work also one 645 00:31:20,900 --> 00:31:27,230 of the couple to become regulars in the 646 00:31:23,690 --> 00:31:29,060 program the wife went back to her 647 00:31:27,230 --> 00:31:33,740 support group and she happened to be 648 00:31:29,060 --> 00:31:36,680 three at the time and joke bickerness I 649 00:31:33,740 --> 00:31:40,850 really want to be tired because she 650 00:31:36,680 --> 00:31:43,760 dropped with us and in some ways that is 651 00:31:40,850 --> 00:31:48,010 the best way to get program participants 652 00:31:43,760 --> 00:31:48,010 become it much easier to trust 653 00:31:53,419 --> 00:31:59,690 but as you can imagine you know in in 654 00:31:57,609 --> 00:32:02,239 Greater Philadelphia actually 655 00:31:59,690 --> 00:32:05,379 Philadelphia along I think the current 656 00:32:02,239 --> 00:32:22,970 statistics are and 100,000 people with 657 00:32:05,379 --> 00:32:27,470 outcome not 129 so yeah huge and right 658 00:32:22,970 --> 00:32:34,249 now at our outside limits or certainly 659 00:32:27,470 --> 00:32:38,820 not 50 so part of the challenge is we 660 00:32:34,249 --> 00:32:42,790 are an organization I do motive 661 00:32:38,820 --> 00:32:46,210 and I have thanks 662 00:32:42,790 --> 00:32:49,600 an almost full-time outreach and 663 00:32:46,210 --> 00:32:56,290 volunteer but there's only so much we 664 00:32:49,600 --> 00:32:58,270 can do we do have to so that's one wall 665 00:32:56,290 --> 00:33:02,640 that goes back to that issue of 666 00:32:58,270 --> 00:33:10,290 sustainability 15 the other problem is 667 00:33:02,640 --> 00:33:14,920 how do we reach all of the nearly $200 668 00:33:10,290 --> 00:33:22,450 and that has been a continuing challenge 669 00:33:14,920 --> 00:33:24,580 from one of the new the benefits of the 670 00:33:22,450 --> 00:33:28,690 Arctic chef program that I did 671 00:33:24,580 --> 00:33:30,580 is network whom you probably want to do 672 00:33:28,690 --> 00:33:33,130 that program if never done folks have 673 00:33:30,580 --> 00:33:39,049 never done anything else we start on 674 00:33:33,130 --> 00:33:43,020 multiple but is also 675 00:33:39,049 --> 00:33:46,950 so it is something that we are working 676 00:33:43,020 --> 00:33:52,700 on restarting to focus on in connection 677 00:33:46,950 --> 00:33:55,850 with much more traditionally underserved 678 00:33:52,700 --> 00:33:57,950 you know around but ours are generally 679 00:33:55,850 --> 00:34:04,409 populated with people who are 680 00:33:57,950 --> 00:34:07,490 middle-class too and this is not in any 681 00:34:04,409 --> 00:34:14,510 way such that they don't have their own 682 00:34:07,490 --> 00:34:18,169 economic needs but for people who are 683 00:34:14,510 --> 00:34:20,580 living in disadvantaged community 684 00:34:18,169 --> 00:34:26,429 communities of color where the stigma 685 00:34:20,580 --> 00:34:29,879 are even more damaging and perfuses you 686 00:34:26,429 --> 00:34:34,050 know that we are approached and we're 687 00:34:29,879 --> 00:34:39,090 starting to make connections or Latino 688 00:34:34,050 --> 00:34:43,860 community people to America we're going 689 00:34:39,090 --> 00:34:48,740 in we believe very deeply that we 690 00:34:43,860 --> 00:34:51,390 or from community so we need to finish 691 00:34:48,740 --> 00:34:59,770 credible partnerships 692 00:34:51,390 --> 00:35:01,960 help off the road drop very well yes how 693 00:34:59,770 --> 00:35:08,080 did you make connections for the other 694 00:35:01,960 --> 00:35:12,250 service operation so we have actually an 695 00:35:08,080 --> 00:35:18,790 entire ritual by but in recent months we 696 00:35:12,250 --> 00:35:24,970 have had health care centers and other 697 00:35:18,790 --> 00:35:34,180 social service centre reach out so there 698 00:35:24,970 --> 00:35:37,030 is a health care center in ability they 699 00:35:34,180 --> 00:35:42,700 invited me to come introduce our program 700 00:35:37,030 --> 00:35:45,600 and the director of programs at the 701 00:35:42,700 --> 00:35:45,600 center will translate 702 00:35:46,369 --> 00:36:02,819 and it was probably engaged they started 703 00:35:59,069 --> 00:36:07,260 that every nothing in volunteer how we 704 00:36:02,819 --> 00:36:12,809 get this in our is so they did open in 705 00:36:07,260 --> 00:36:18,180 crisis or budget invited the pen memory 706 00:36:12,809 --> 00:36:22,859 center have which again our research 707 00:36:18,180 --> 00:36:26,359 partners has a position dedicated to 708 00:36:22,859 --> 00:36:31,609 diversity and inclusion and she has been 709 00:36:26,359 --> 00:36:31,609 amazing so is 710 00:36:36,020 --> 00:36:43,450 but when they actually get there 711 00:36:51,540 --> 00:36:56,800 in a Philadelphia area 712 00:36:54,010 --> 00:37:08,560 there's our fish are creatures works at 713 00:36:56,800 --> 00:37:10,840 all our Beach of they're actually art 714 00:37:08,560 --> 00:37:12,940 reaches throughout the country okay I 715 00:37:10,840 --> 00:37:17,920 certainly know that Philadelphia's but 716 00:37:12,940 --> 00:37:20,500 we won the art features and exhibition 717 00:37:17,920 --> 00:37:25,650 is a wonderful mission the idea is to 718 00:37:20,500 --> 00:37:30,610 provide equally discounted access to 719 00:37:25,650 --> 00:37:33,640 cultural artistic any kind of program in 720 00:37:30,610 --> 00:37:36,730 New York that someone might 1 to 10 and 721 00:37:33,640 --> 00:37:43,600 because of disability are yes pretty 722 00:37:36,730 --> 00:37:48,490 consistent so most I would say a good 723 00:37:43,600 --> 00:37:52,390 chunk of the area work with art reached 724 00:37:48,490 --> 00:37:54,330 provide discounted addition to such an 725 00:37:52,390 --> 00:38:03,340 opposition to 726 00:37:54,330 --> 00:38:09,120 general admission damn theater yes yes 727 00:38:03,340 --> 00:38:09,120 so that is an incredibly important 728 00:38:14,610 --> 00:38:20,340 people access to best day ever since 729 00:38:20,970 --> 00:38:36,130 attending admission wrote it is badly 730 00:38:31,050 --> 00:38:42,100 even in the world of people all working 731 00:38:36,130 --> 00:38:49,630 toward something working for a noble 732 00:38:42,100 --> 00:38:50,500 shop and unfortunately in this 733 00:38:49,630 --> 00:38:52,910 particular 734 00:38:50,500 --> 00:38:56,599 that 735 00:38:52,910 --> 00:38:59,529 but means we we exist without 736 00:38:56,599 --> 00:38:59,529 partnerships 737 00:39:01,780 --> 00:39:05,160 that is not a career 738 00:39:09,559 --> 00:39:17,670 fascinating business setting where you 739 00:39:13,859 --> 00:39:20,009 are just now very textured wonderful and 740 00:39:17,670 --> 00:39:26,160 my other question is you experienced 741 00:39:20,009 --> 00:39:30,329 mentor definition that sure sure so what 742 00:39:26,160 --> 00:39:38,130 you see here is a count way of programs 743 00:39:30,329 --> 00:39:41,160 and progress so the way here which is 744 00:39:38,130 --> 00:39:51,779 wonderfully symbolic of what you do is a 745 00:39:41,160 --> 00:39:55,349 still Enochian magic garden and it is it 746 00:39:51,779 --> 00:39:58,349 is I don't even know where to start 747 00:39:55,349 --> 00:40:04,380 Beauty it is your business it is dual 748 00:39:58,349 --> 00:40:07,740 life in is magically optical and we have 749 00:40:04,380 --> 00:40:11,730 we have been working to form a 750 00:40:07,740 --> 00:40:13,739 partnership for three years now and it's 751 00:40:11,730 --> 00:40:17,039 not for lack of wanting to that it's 752 00:40:13,739 --> 00:40:19,170 kind of business long however neither 753 00:40:17,039 --> 00:40:23,819 garden has become one of the sites for 754 00:40:19,170 --> 00:40:26,670 our art the jet program so all of the 755 00:40:23,819 --> 00:40:30,029 blue and green anything with bright 756 00:40:26,670 --> 00:40:34,680 colors is present is measurable yes 757 00:40:30,029 --> 00:40:36,989 and the data are being painted on 758 00:40:34,680 --> 00:40:41,339 outside porches actually up with your 759 00:40:36,989 --> 00:40:42,810 Art Museum which is our long drive you'd 760 00:40:41,339 --> 00:40:46,500 be a partner 761 00:40:42,810 --> 00:40:51,650 program usually conversation being in 762 00:40:46,500 --> 00:40:55,320 the gallery um but we also sometimes do 763 00:40:51,650 --> 00:40:59,580 Argentinian sale and that particular 764 00:40:55,320 --> 00:41:01,560 banner is evidence of something that we 765 00:40:59,580 --> 00:41:06,710 do every year we have an animal 766 00:41:01,560 --> 00:41:18,270 opposition's work done by people in our 767 00:41:06,710 --> 00:41:25,790 organization and in the lead us we have 768 00:41:18,270 --> 00:41:29,160 reconsidered the community where we we 769 00:41:25,790 --> 00:41:35,330 create some sort of large-scale project 770 00:41:29,160 --> 00:41:38,040 that is a good way to involve a group of 771 00:41:35,330 --> 00:41:41,630 six to ten people with dementia that's 772 00:41:38,040 --> 00:41:44,100 generally living in the community and 773 00:41:41,630 --> 00:41:48,560 volunteer to the community who haven't 774 00:41:44,100 --> 00:41:51,930 volunteered to them if the one day 775 00:41:48,560 --> 00:41:58,050 volunteer demands that extravagant and 776 00:41:51,930 --> 00:42:00,410 so that's tanner two years ago our large 777 00:41:58,050 --> 00:42:04,220 community engagement project was 778 00:42:00,410 --> 00:42:08,510 painting 90-foot banners 779 00:42:04,220 --> 00:42:14,329 and then paint and colors of the Arts 780 00:42:08,510 --> 00:42:18,440 logo and really if we if we gave a 781 00:42:14,329 --> 00:42:20,839 problem all which we didn't ask people 782 00:42:18,440 --> 00:42:23,329 to pick out the brussels and go 783 00:42:20,839 --> 00:42:25,630 the only property roses with what was 784 00:42:23,329 --> 00:42:30,859 join the fight 785 00:42:25,630 --> 00:42:34,220 so that's and then there's a hair 786 00:42:30,859 --> 00:42:39,050 community settings this is also that 787 00:42:34,220 --> 00:42:44,660 would be a watercolor and waterful 788 00:42:39,050 --> 00:42:49,880 proximity and then mom is just jefferson 789 00:42:44,660 --> 00:42:51,710 classroom so we we go wherever and you 790 00:42:49,880 --> 00:42:57,020 need in response to your question 791 00:42:51,710 --> 00:42:59,810 governmental so our premise for art's 792 00:42:57,020 --> 00:43:03,290 adjust is the body literally wanted to 793 00:42:59,810 --> 00:43:08,329 turn upside down the general hierarchy 794 00:43:03,290 --> 00:43:10,520 of patients doctor now these are not yet 795 00:43:08,329 --> 00:43:12,470 doctors but they are first-year medical 796 00:43:10,520 --> 00:43:17,599 students second-year sometimes they're 797 00:43:12,470 --> 00:43:19,849 here and they're going to be done so in 798 00:43:17,599 --> 00:43:22,339 order to participate in this program 799 00:43:19,849 --> 00:43:26,180 they essentially have two operations to 800 00:43:22,339 --> 00:43:30,920 leave their doctors at the door and to 801 00:43:26,180 --> 00:43:35,210 come in knowing the victim and that the 802 00:43:30,920 --> 00:43:40,460 authorities in this site are there is 803 00:43:35,210 --> 00:43:45,849 dementia for little remember and I have 804 00:43:40,460 --> 00:43:53,150 to say each other but I have to say 805 00:43:45,849 --> 00:43:54,980 Jefferson has been teased and it is this 806 00:43:53,150 --> 00:43:58,300 program is part of an overall effort 807 00:43:54,980 --> 00:44:03,980 that they're making to try to figure out 808 00:43:58,300 --> 00:44:07,400 how to put the empathy back into because 809 00:44:03,980 --> 00:44:13,099 the data if Jefferson is the originator 810 00:44:07,400 --> 00:44:16,130 of the empathy scale and the doctors dr. 811 00:44:13,099 --> 00:44:21,520 bull Jobs who created that study for 812 00:44:16,130 --> 00:44:21,520 years whether how long 813 00:44:22,450 --> 00:44:31,430 but earlier and that is not just a 814 00:44:28,340 --> 00:44:48,860 Jefferson stupid that throughout the 815 00:44:31,430 --> 00:44:52,250 country so they are doing a a question 816 00:44:48,860 --> 00:44:54,710 complete to the question 2004 matter the 817 00:44:52,250 --> 00:45:00,460 congressman how to complete a time zones 818 00:44:54,710 --> 00:45:03,890 with economic questions for multiparty 819 00:45:00,460 --> 00:45:07,160 want to do guitars those were 820 00:45:03,890 --> 00:45:11,510 participating in the program it's not 821 00:45:07,160 --> 00:45:13,280 the knackers not part it also plays 822 00:45:11,510 --> 00:45:17,720 where is this is made of doing model 823 00:45:13,280 --> 00:45:20,420 design and and where that is is that 824 00:45:17,720 --> 00:45:22,430 really thick wait I'm not talking 825 00:45:20,420 --> 00:45:26,420 somebody that did not believe any other 826 00:45:22,430 --> 00:45:29,660 very hot as we're helping you we ignore 827 00:45:26,420 --> 00:45:32,930 the guys you are in you are help you my 828 00:45:29,660 --> 00:45:35,240 headline Aaron apparel all those are 829 00:45:32,930 --> 00:45:40,100 fair question so and where you prefer 830 00:45:35,240 --> 00:45:41,960 okay so let me start and go backwards 831 00:45:40,100 --> 00:45:42,920 probably by the time I go back that 832 00:45:41,960 --> 00:45:45,800 you're going to remind you what 833 00:45:42,920 --> 00:45:50,210 reflection look then the reasons we do 834 00:45:45,800 --> 00:45:54,260 not charge is because we know and 835 00:45:50,210 --> 00:45:57,730 they're funny hood data to baptism that 836 00:45:54,260 --> 00:46:02,450 people living with dementia 837 00:45:57,730 --> 00:46:05,990 have if not financial hurdle of the 838 00:46:02,450 --> 00:46:09,280 weather they are surrounded by one girl 839 00:46:05,990 --> 00:46:12,680 after another some of our participants 840 00:46:09,280 --> 00:46:14,870 could not afford to pay can't even 841 00:46:12,680 --> 00:46:16,730 afford to the park so if it were someone 842 00:46:14,870 --> 00:46:24,350 where they have departmental treatment 843 00:46:16,730 --> 00:46:27,940 in home so so I essentially as the power 844 00:46:24,350 --> 00:46:32,480 of an organization made the decision 845 00:46:27,940 --> 00:46:32,960 finances are not did you make a good 846 00:46:32,480 --> 00:46:36,980 point 847 00:46:32,960 --> 00:46:40,670 how is that how is that equity if you 848 00:46:36,980 --> 00:46:42,710 know everyone else out there pain it 849 00:46:40,670 --> 00:46:45,070 turns out that I was actually kind of 850 00:46:42,710 --> 00:46:48,710 savvy and didn't have a clue that I was 851 00:46:45,070 --> 00:46:50,490 because I was paying probably at least 852 00:46:48,710 --> 00:46:54,160 50% 853 00:46:50,490 --> 00:47:01,000 of our program purchase make individual 854 00:46:54,160 --> 00:47:06,520 solution and deputy apartment right here 855 00:47:01,000 --> 00:47:08,710 yes they make individual donation and in 856 00:47:06,520 --> 00:47:12,310 the end and we denote individual 857 00:47:08,710 --> 00:47:15,840 donations are often Iranian so in the 858 00:47:12,310 --> 00:47:20,860 end by burning their trust and by 859 00:47:15,840 --> 00:47:25,660 showing empathy for situations in the 860 00:47:20,860 --> 00:47:28,330 end it made them feel tremendous 861 00:47:25,660 --> 00:47:30,250 ownership program so in terms of 862 00:47:28,330 --> 00:47:37,870 sustainability 863 00:47:30,250 --> 00:47:41,470 maybe we expose our largest rigor but 864 00:47:37,870 --> 00:47:44,440 not our first year our budget zero it 865 00:47:41,470 --> 00:47:48,100 would be I did ever think and I did it 866 00:47:44,440 --> 00:47:54,490 on a volunteer basis second year our 867 00:47:48,100 --> 00:47:58,680 budgets 30,000 last year it was more 868 00:47:54,490 --> 00:47:58,680 than twice that and this year 869 00:48:00,330 --> 00:48:12,570 that's not all because of individual 870 00:48:03,330 --> 00:48:16,710 deletions with 50% so I think I think in 871 00:48:12,570 --> 00:48:18,930 terms of sustainability you know with 872 00:48:16,710 --> 00:48:22,310 actually another one we're talking about 873 00:48:18,930 --> 00:48:25,770 this about how do you how do you make a 874 00:48:22,310 --> 00:48:28,830 program that biased nature has to be 875 00:48:25,770 --> 00:48:31,440 intimate and small to do with substitute 876 00:48:28,830 --> 00:48:34,980 how do you make that scalable how do you 877 00:48:31,440 --> 00:48:37,110 make it sustainable and I say that if 878 00:48:34,980 --> 00:48:38,940 you remember who it was that I think the 879 00:48:37,110 --> 00:48:44,040 answer to that is do what we're doing 880 00:48:38,940 --> 00:48:47,070 here it has to be across the sector it 881 00:48:44,040 --> 00:48:48,390 has to be that we are all generous 882 00:48:47,070 --> 00:48:52,410 enough with each other 883 00:48:48,390 --> 00:48:57,740 that number one you know none of us can 884 00:48:52,410 --> 00:48:57,740 handle I mean not a single institution 885 00:49:01,700 --> 00:49:18,770 before birth and in each case you figure 886 00:49:07,400 --> 00:49:31,480 out what that is and it's not it's not a 887 00:49:18,770 --> 00:49:31,480 union in the bottle but a number en 888 00:49:39,740 --> 00:49:45,210 [Applause]